I’m alright.

As of today, it’s been 2 weeks since I last logged in to either Facebook or Twitter. I got my first, “Are you okay? People are worried about you.” text the day before yesterday.

I was both surprised (a) that anybody was worried (because Depression would have me believe that nobody cares) and (b) that it took 12 days for anybody to miss me enough to check in. (Though, to be fair, I’ve been checking in with a lot of people and making the first move because I recognize my responsibility to maintain relationships that are important to me.)

I had hoped that by posting here about my decision to step away from social media that it would have helped folks to not worry.  And then I found out that WordPress no longer publishes blog updates to personal timelines.  It only works if it’s attached to a Page and not to a personal account.  Adam thinks I should just create a Page for this blog. He’s probably right.

But, if I’m going to put in the work to do that, may as well put in the work to revamp the site and market it to increase readership… to start daily posting again, and hope that by leaving footprints on the path that I walk, that it does anything helpful and good for anyone else.

Thinking about it makes it feel like a lot more work than it is… It also would require me to log in to FB and Twitter and weed my digital garden to curate a better newsfeed experience. Right now, I’m not sure whether or not I have the time or energy for all that. I’ve just started to not automatically reach for my phone every few seconds.

Banality

To be really frank, I’ve dived deep into housewifery and stay-at-home mom-ness in the last few weeks. I’ve been focused on my family’s health and giving Henry the educational and emotional support he needs to grow up smart, kind, strong, and self-assured.

Sure, my house always seems to me to be in dire need of a maid, no matter how often I pick up (an act that feels constant and on-going), but life is happening here in full force. Loads of creativity through messy art projects and loud, often-dissonant, impromptu music sessions. Lots of science and math through baking and cooking and LEGO and video games.

As someone who used to live her life almost strictly for the stories (Cheers to you for being entertaining, 2004-2006 Past Rae), I find myself having a tough time feeling like I have much to gab about on my public, digital diary.

There’s not much excitement to be found in the daily, constant cycle of dishes and laundry, in religiously coupon-ing with multiple apps [Ibotta, Jewel’s app, Fetch Rewards (Use my referral code, 73962, during signup and you’ll get 2,000 Fetch Points just for starting.), & Coupons.com], meal planning around the weekly promotions at the 3 different grocery stores in walking distance to my house, and, oh yeah, managing my health.

The one remotely interesting thing that I’m doing right now is volunteering with Detention Lifeline, and writing legal briefs is only interesting to me because of the kind of nerd that I am. Truthfully, I’m just grateful that my legal knowledge might help, well, anyone at all.

Back on the Keto Bandwagon

One of the biggest changes of the last few months for me was stopping the keto diet and returning to the standard American diet (SAD for short) while trying to conceive because my high-risk OB wanted me to just do exactly what we did to end up with Henry. (The idea being that since Henry’s pregnancy was uncomplicated and he’s healthier than any of us, I had it right the last time around.)

Well, my 38 year old body isn’t my 33 year old body, and pain and seizures from unnecessary inflammation caused by diet does not make for optimal sexytime.  There’s an order of operations here that just cannot be ignored.

So, I gave the SAD 3 months. I gained 10 pounds and started genuinely struggling with MS, seizures, and depression again. Come to think of it, if it weren’t for the switch in diet, I probably wouldn’t have had the time-travel seizure that created the desire to quit social media. So, yeah. That’s enough of that nonsense.

Do I think I’m going to keep keto throughout my pregnancy?  Definitely not. I want to make sure a developing child has everything it could possibly need while inside me. And morning sickness absolutely begs for carbs. But fertility specialists recommend the ketogenic diet for both men and women who are trying to conceive — and that’s where we’re at. Plus, it helps with MS – both with managing symptoms and with slowing progression. I’m already supplementing with a prenatal vitamin with extra DHA and also take additional folate, so hopefully, everything will work out the way it needs to.

After having a spontaneous miscarriage in August of 2017 and having to end a pregnancy in late November of 2018 due to genetic abnormality, I’m really, really hoping that the 3rd time is the charm. I’ll do whatever needs to be done to help Baby Majka #2 to join our family. We all already feel their absence, and it sucks.

But it is nice to be able to sleep through the night, so I’m not taking that for granted for even a moment.

In that vein of thought, I’m going to get to work on a brief for a guy who is detained in one of our our many American concentration camps, so that he will eventually get to have some good sleep too.

Not Alone.

“You’ve always been addicted to the internet.”

Those were the words that my brother spoke yesterday when we talked on the phone. And he’s right. I was actually addicted to social media before the world wide web was a thing. Back in the early 1990’s, I started getting on bulletin board systems (BBS for short) in an effort to connect with people during the times that I spent at home alone. I’m pretty sure that I was 11 years old and in 7th grade the first time that I dialed in.

“If you’re on the computer with other people, you’re not alone.” was my response. We chuckled about it and moved on with our conversation.

But it got me to thinking. Even when I went away to summer orchestral band camp in 10th and 11th grades, I spent a good amount of my free time (when I was not practicing percussion) in the library at Sewanee, telnetting in to Shadowscape in the hopes of saying hi to friends. I spent time when I could have been connecting with new friends, or growing as a person, desperately trying to stay in touch with old ones so that I wouldn’t be out of the loop when I got back.

The same was true for me in college. Using the BBSes to stave off loneliness was such a real thing for me that I continued to do it once I started at Berklee. With the advent of AOL Instant Messenger, I lost the big conversations that happened in teleconference, but I got closer to many people through individual chats.

I used my computer for friendship so often that my first set of roommates kicked me out for typing too loudly, late at night. My second-semester roommate also noticed how glued-to-the-screen that I was, as I chose not to try to find parties or hang out with other students and instead waited, often for hours, for my long-distance boyfriend to log on to say hi.

I transferred to USC my sophomore year of college, and tried in vain to rush a sorority and make friends in real life. My roommate was a total cunt who went out of her way to hurt me. And I met my first husband, who was similarly attached to his computer, though his addiction was video gaming.

I realized that USC wasn’t the place for me, and I went back to Berklee… but I didn’t have the self-confidence necessary to break up with that guy, so, even though I had my own apartment in Boston, I didn’t go out exploring. I didn’t go to parties in a city where there are more college students than regular citizens. I stayed in, waiting for him to log on to See-You-See-Me or AIM. And on the rare occasion when I did choose to leave the apartment or have friends over, he accused me of cheating on him (which is kind of hilarious in retrospect, since he went to parties at USC and admitted to cheating on me.)

After he moved to Boston, I will admit, my obsession moved from social media to him and business planning. I was convinced that if I wrote the business plan for AudioXtacy well enough, that I’d be able to get venture capital, and could help change the landscape of the music industry. Oh, the hubris!

In late 2002, one of my friends from the BBSes introduced me to Live Journal, and a new obsession was born. Not only could I keep up with my friends from the BBSes who were busy writing about their thoughts, feelings, hopes, and dreams — but also friends from college who were trying to promote their bands and build their brands.

In 2005, after my divorce, I moved to Los Angeles for law school, and Live Journal is where I found my people. There was another girl from the BBSes who had moved to L.A., and our friend-overlap was huge, so she invited me to meet “the geeks” she was friends with in L.A. It was love at first type.

If there was ever a time in my life when I actually got out of my home and lived, it was during my first 2 years in Los Angeles. I was the Section A representative for the Student Bar Association. I felt what it was like to be well-known for something other than being the weird, brainy Jewish kid, and I liked it. I went to bars or parties at least 2 nights a week. I read up on human sexuality when I wasn’t reading case law. I worked out at least 2 hours a day, and was in better shape than I had ever been in my life. I got on OkCupid — another social network — which was responsible for my meeting and ultimately falling deeply in love with Adam (my current and forever husband), who ended up getting a job at MySpace.

And then, I was diagnosed with MS.

The diagnosis itself wasn’t what drove me back to social media overuse, though it is what caused me to start this blog. Truthfully, I never stopped reaching out online. I was still posting daily (sometimes multiple times per day) on Live Journal, always had AIM open on my system, and with Adam and our friend Gideon working at MySpace, I spent a truly stupid amount of time on that platform as well. Once Twitter and Facebook became things, I was on them, immediately. And often, to my detriment, in class. Hell, I even had a Friendster account at one point.

When seizure disorder struck, and I couldn’t make it to all my classes or safely go out with friends, Live Journal and Facebook were my only real windows to the outside world and the people I cared about. Then Live Journal got purchased by some Russians, and everyone just stopped blogging.

I spent a good 5 years couch-locked because of seizures. During that time, if I wasn’t preparing for the bar exam or doing the basic chores of life, I was on Facebook (or, for a hot second, Google+). That includes when we had to move to Romeoville because MS and 2 years of unemployment had basically bankrupted us, and the years we lived in Chicago-proper, before having Henry.

After Henry was born, Facebook became even more important to me because the message boards on TheBump were filled with angry, self-righteous bitches. I was so painfully lonely in that apartment, trying to figure out how to be a mom while dealing with MS, seizures, lack of transportation, and a horrible case of PPD.

And now, after studying how food affects me, I have fewer seizures than I have for the past decade. Most days, I can walk to the store or Gymboree with Henry easily. Most weeknights, I can make it to the gym. But I wasn’t fully living in meatspace.

Where did I look for healthy recipes? Facebook (and Pinterest). Where did I go for support and guidance with weight loss or suicide prevention or questions about motherhood? Facebook. Where did I do research into the best methods for homeschooling my son? Facebook. Where did I spend most of my time, when I should have been cleaning and connecting with my son? Facebook.

I was still looking online for companionship. I was still scrolling compulsively. I was still feeling innately lonely. Hell, even with my husband in the room, I still felt the need to constantly check in, and I didn’t realize how that may have been hurting him. (Sorry, babe.)

And when my PTSD went absolutely haywire a couple of days ago because of the combo of time-travel and a terrifying news cycle, I got angry when confronted with the fact that I quite literally couldn’t look away.

So, at the age of 38, I’m breaking a pattern that has served as an emotional crutch for 27 years — nearly two thirds of my life. It’s downright painful.

I feel like I’ve abandoned a ton of people who I deeply care about, even though I am actively reaching out to folks on the phone and over text. In the interest of personal growth and positive mental health, I’ve abdicated responsibility as an admin on more than 20 groups, without warning anyone, which feels really shitty, since I derived a sense of purpose from helping people in those groups. And to be frank, I feel like I’ve entirely cut myself off from society, since I still can’t drive anywhere, and all of the community’s social events are available to view there.

I feel like a failure at one of life’s most basic skills: just being okay being alone. And I have no idea how to make friends who aren’t the mothers of my son’s playground playmates anymore. That being said, I’m profoundly grateful for that small handful of mommies. They are real friends, and it’s because of them that I feel like I am up to this challenge.

I hear that making friends after your 20s is tough for most people anyway, and that fear of loneliness drives some of humanity’s most prolific and toxic behaviors, like substance abuse.

So, I guess, when it comes to needing to grow this skill, I’m really not alone.

Opting out of psyops.

So, longtime readers of this blog are well aware of the fact that I have seizures that occasionally culminate in postictal confusion where I believe it’s a different date when I wake up. I like to jokingly call it “time travel.”

Recently, I had a larger seizure (which is increasingly rare for me since making changes to my diet), and when I woke up I was certain it was 2003.

16 years is a huge difference when it comes to life, the news cycle, and, well, pretty much everything! It really freaked me out to know that I was married to a different man, had a 4-year-old child, and owned property in Chicago.

Back in 2003, Chicago was probably my least favorite American city because of some ridiculous shenanigans that occurred here in 1996/1997, when my then-best-friend moved here from Memphis. We made some terribad decisions together on New Year’s Eve. Anyhow — in 2019, Chicago might be my favorite American city — and not just because I live in the burbs. It has all the best things of Boston (accessible, inexpensive public transit), Los Angeles (arts!), and Nashville (low cost of living for a major city) without the detriments of each of those cities.

Anyway, I found myself compulsively scrolling Facebook after I came back from the confusion. I habitually check my timeline when I come back from postictal confusion to try to jog my memory and make sure that I am up to date. This time, I couldn’t look away.

Now, I understand that fight/flight/freeze is a real thing, with or without mental health issues — but I also recognize that I have both the opportunity and obligation to opt out of the info stream that is causing exacerbated problems! So, rather than continuing to be affected by psyops, I am taking a social media break.

The constant news cycle and prolific articles about what is happening in our country are genuinely terrifying. It was so bad that I was feeling an intense need to run to another country, with or without my family. And that’s a terrible, terrible idea.

It is really difficult to not be constantly checking my phone right now. The fear is real. The anger is real. But the idea that staring at the dumpster fire will help me feel more in control of the situation is, well, just false.

One of the things that I’m really concerned about is that I participate in a ton of communities on Facebook that are designed to help with accountability and support for chronic illness, weight loss, and mental health. I don’t want the people in my communities to think that I’m abandoning them, but I have to put my and my family’s safety and wellbeing first.

Fortunately, having a memory problem makes it a little bit easier to avoid social media. I was able to log out of all of my accounts on all of my devices, and I genuinely do not know my passwords to get into, well, anything. That road block is far more effective than the BlockSite app at stopping me from logging in despite my better judgment.

So, if you need me, or if you want to respond, please email or text or ping me here by replying.

Hope you’re all having a happy Friday. ❤

Another month in.

It’s been a month since my last entry. It seems like as good a time as any to update.

Adam has lost 30 pounds in the 6 weeks since we started the keto diet. I have lost 10.  I’m not really sure why I have only lost 2 pounds in the last month. I’ve been doing all the things – food journalling, measuring everything, counting calories as well as macros, but I am at a personal plateau. I got stuck around 185 for months when I was losing this weight the first time. Besides, my shape is obviously changing, and I’m sure that I’m benefiting anyway.

How do I know? Because July 11th was my 10 year seizure-versary, and it came and went without me even thinking about it.

I am becoming accustomed to having energy and being able to think clearly.  And, despite having catamenial seizures, I did not cave and order sweet & sour chicken w/ fried rice… no matter how badly my mind thought I wanted it.

But What Are You Eating?

I’ve been getting this question a lot. It makes me think that folks who are considering the diet haven’t been able to really wrap their heads around how the diet works because it’s so different from the one that they’re used to.

For the curious, my day usually looks like this:

Breakfast

  • bulletproof coffee -or-
  • coffee & a mug cake -or-
  • coffee and scrambled eggs w/cheese

Lunch –

  • leftovers from dinner or
  • a big bowl of spinach and/or lettuces plus whatever I’d have on a sandwich (turkey, hard salami, a slice of cheese, 1 tbsp mayo, 1 tbsp mustard, and a diced pickle is a favorite, as is chicken, bacon, blue cheese, & avocado)

Dinner –

  • some kind of grilled meat (chicken, steak, lamb, pork chop) or fish (usually salmon, swordfish, or tuna) w/ a cooked green veggie (asparagus, zucchini, broccoli, spinach, artichokes, Brussels sprouts) -or-
  • a recipe I’ve grabbed off the internet or created from family favorites, like
    • Adam’s Hand Pies/Calzones
    • Baked Chicken & Cauliflower “Mac & Cheese” Casserole
    • Homemade Pizza with Fathead Dough crust
    • Zucchini Noodles w/Turkey Meatballs & Pesto
    • Keto Jambalaya

Dessert – almond butter or cheesecake “fat bombs”

Snacks – 

  • baked cheese “crackers”
  • string cheese
  • precooked breakfast meats (bacon, sausage links)
  • pork rinds
  • nuts & seeds

Wherein I whine about whining…

Oddly, friends of mine have been adding me to keto communities on FB, whether or not I have expressed any interest.  I mean, it never hurts to have more recipes, I guess… but I’m getting really tired of  the support aspect of many of these groups.

Don’t get me wrong — I’m all about supporting one another in our journeys, but I’m sick to death of reading people whining about how hard this diet is.  I hear enough whining from my 3 year old and from my inner fat bitch who would prefer for me to subsist on pizza and donuts.  YES, the diet is a tough adjustment from the SAD, but whining is toxic.

I want to tell each of these people, “Listen, you don’t have to be on this diet. You’re making a powerful choice and powerful change. Change is the opposite of comfortable!”

I think part of the problem is that listening to other people complaining does nothing to strengthen my personal resolve. It only amplifies the voice in my head that encourages me to quit or purposefully slip up.

I am well past acknowledging that I have automatic negative thought-patterns whispering in my ear, telling me to harm myself. My full-time job is to tell those thoughts to fuck off.  And right now, one way I do that is by powerfully choosing what I do and don’t put in my mouth.

I think that when it comes to dieting/changing your lifestyle/way-of-eating or WHATEVER you want to call it, it all comes down to one question: What’s your motivation?

It’s okay to admit to yourself that you’re changing your lifestyle in order to lose weight and be healthier. It’s important to be honest with yourself. The real problems that cause yo-yo dieting and will whittle away at your self-esteem come in when your motivation for becoming healthier stems from a place of negativity.

If you’re trying to lose weight because you are sad about what you see in the mirror, it’s easier to get down on yourself along the way because you’re focusing on something that makes you sad.  Your weight loss journey then becomes one of escaping the pain of your own self-flagellation.

The sort of negative self talk that comes from this sort of motivation can sound like, “What’s more important to you? Looking good or tasting a cookie? Nothing tastes as good as thin feels.”  The problem there?  Being unkind to yourself becomes habitual, and habits are tough to break. When and if you reach goal weight, you’ll still have more practice at being unkind to yourself than you have practice at giving yourself credit for your achievements, and you’ll wonder why you still feel sad.

If you’re trying to lose weight because you want more time with the people you love, it’s a lot more difficult to shame yourself.  I mean how can you feel bad about wanting to spend time with people who make you smile? “Would you rather eat a cookie or have more time feeling well with your kid(s)?” makes the choice easier for me, at least.

Of course, it’s absolutely ideal for weight loss to be secondary. I’m extra lucky in that regard.  Seizure control matters to me far more than weight loss — but I’d be lying if I didn’t want to get back to a healthy BMI.   The thing is, I know that in order to achieve weight loss or lasting lifestyle change, I need a happy thought to focus on to get me there. The sad or angry ones don’t help as much, and plateaus are very real.

Anyway, I’ve been really appreciating that I learned in therapy that I can’t control my automatic thoughts, but I can always control my actions.  6 full weeks with no cheating is a big deal for me.

The trick to not cheating? Always have something on hand you can eat. Prepping ahead for grab-and-go eating is the name of the game.

Without further ado, here are more keto-friendly recipes that are worth the dishes they’ll create to make them.

Recipes That Are Totally Worth It

keto mug cake

Eat your heart out, Otis Spunkmeyer.

Here are some recipes that Adam and I have work-shopped and fallen in love with over the last month:

Keto Party Mix – This tastes JUST like Chex Mix. It’s the first time I’ve liked pork rinds. I strongly recommend a deluxe nut mix without peanuts, like the one we got by The Snack Artist.

Rae’s Chocolate Chocolate Chip Mug Cake – I love to split this with Henry for breakfast! Best served with whipped cream and/or coffee.

Rae’s Lemon Blueberry Mug Cake – Another good one for breakfast or just as a treat. 🙂

Adam’s Keto Jambalalya – This one takes time, but yields plenty of delicious leftovers.

fathersdaynutsFather’s Day Trail Mix – This is what Henry and I made for Adam for Father’s Day 2018.  Which reminds me… he’s all out and I need to make him more today. 🙂

Anyway! I have taken a long time writing this out today, and I am frankly amazed that Henry let me get away with it.

I hope that you’re feeling well and are having a good day.

It’s time for me to go do chores, despite somehow being sick with a headcold yet again. (If only Keto also improved my immunoglobulin count!)

Let me know in the comments if you have any questions or recipe requests for me and Adam to makeover!

 

Diet and Still-Not-A-Dictatorship

Diet first. It’s easier.

Keto’s still going well. I stopped using MyFitnessPal and actually paid for Cronometer. I regret it, since Adam is happier with MFP, and I’ve had to input no fewer than 20 recipes just for myself in the last 2 weeks.

Part of me wants to switch back to MFP because y’all can see my food/activity diary there, but more of me is like, “Dammit, I paid $40 for this program! I’m gonna use it!”  The reason I paid the $40?  To be able to share recipes with Adam. 😐

As far as deciding which caloric/macro goals to go with, I opted for the goals that I originally had in MFP because I don’t want to lose muscle mass.

Calories 1490
Carbohydrates 19 g (5 %)
Fat 116 g (70 %)
Protein 93 g (25 %)

Weight as of yesterday morning: 188.1 (Whaaaaat?)

I’m down 8 pounds since the start!  It’s kind of crazy to think about, since I didn’t lose any weight on paleo, even with exercise, even when I stuck to it for months at a time. What’s even weirder is that losing weight was not really the point.   Seizure control, improvement in depression and anxiety, and more energy was.

Presently, I’ve got more energy than I used to have on a daily basis.  It’s especially significant since I’ve been really sick this week with an upper respiratory infection.  Like on-antibiotics, sleeping-next-to-a-vaporizer, needing-to-put-Vaseline-on-my-nose sick. I haven’t had an appetite, but I’ve made sure to take all my vitamins and everything.  I’m still in ketosis, according to the strips.  Adam even rocked my socks off yesterday by making 90 second keto mug bread and turning it into grilled cheese.

grilled-cheese-1

Not my sandwich, but very similar looking.

What might be the most significant change, however, is that my constant inner negative chatter is conspicuously missing.  The ruminating suicidal thoughts? Gone after the first full week at or below 30g of carbs. The constant fear that I’m doing something wrong and that my whole world is going to crumble to nothing because I’m somehow woefully inadequate in a way that I cannot even grok? Only present when my PTSD has been triggered.

If my experience is normal, I can’t imagine why changing to this diet wouldn’t be part of any regular treatment plan for folks who are chronically depressed and/or suicidal.  Maybe we just don’t understand the brain or nutrition well enough yet. Maybe I’m an outlier. *shrug*

Anyway, I’ve had fewer mood swings, been more patient with Henry overall, and I’ve been more motivated in every area of my life, despite being sick-on-top-of-ill. Altogether bitchin.

But what’s really super cool? The lack of seizures. Don’t get me wrong — I had a harder time last night (at least 4 of them), but I also had a low grade fever. Pseudoexacerbations happen, yo.  This feels like it’s getting the job done.  I hope it is.

But Really Though…

TBH, no amount of food-obsession-to-help-me-feel-in-control can stop me from thinking about the insane shit happening at our border.

I can’t believe that I find myself wondering why the “good guys with guns” would let thousands of children languish in prison camps.

I can’t believe that I find myself wondering — with police, soldiers, and thousands of other government employees also taking oaths to protect the Constitution, why no one appears to be actively protecting it, aside from lawyers and judges — who are working their happy asses off, I might add. (Seriously, my hat’s off to the ACLU, Southern Poverty Law Center, Lawyers for Good Government, KIND, and RAICES.)

I wonder how there can be so many millions of us deeply outraged at what is happening, and how we can organize marches that will undoubtedly be attended in record numbers — and yet, we march on peaceful streets rather than storm the camps and free the kids.

I wonder about how people can cheer over the President’s executive order when it doesn’t mandate that the children who have already been separated be returned to their families and specifically authorizes indefinite detention for all families in the future.  Nobody deserves “forever” in jail who isn’t a convicted murderer or serial rapist, whether they’re with their family or not. Innocent children should not grow up in jail. The mere thought of it sets me on fire.

I wonder what our lives are even for if we can’t protect infants from the horrors of the American prison-industrial system. Or from being trafficked by the government into illegal adoptions. (Many of the detained children have been sent to Michigan to be under the care of Bethany Christian Services. It is an adoption agency with ties to Betsy DeVos. The adoption system in America is a multi-billion dollar industry.)

Why are we asking #wherearethegirls? Why are we asking #wherearethebabies? Why are we accepting that the camps are demanding 2 weeks notice from government officials before they’ll allow them to even VIEW what’s happening on site with their own eyes? How can we bear witness to kidnapping and false imprisonment and not take direct action against it to make it stop?

Because these acts are being perpetrated by our government, under our watch, with our money, we, as citizens, have an affirmative duty to mitigate the damage and right this wrong as quickly as possible. We are not bystanders! We are part of this.

Are we, as citizens, really so desensitized, so tired, so weak, and comfortable that we can hear the screams of babies in detention, caused by our government, funded by our labor and wages, and not only not feel culpable, but believe there’s truly nothing we can do to make it stop other than giving money to fundraisers and complaining loudly to people who represent private interests (like the for-profit prisons who line Trump’s pockets) more than they do their constituency?

Can we be aware of rampant (1,224 complaints so far!), horrific abuse and still be too afraid of our government to rise up in any meaningful way?

Yeah, probably, until they start coming for us… which is pretty likely to happen since 2/3 of the population has no 4th Amendment rights when it comes to border security.

niemollerquotemonmouthnj580pxw

The real kicker here, though, is that Congress is already gunning for us. They want to fund our concentration camps by getting rid of Social Security, Medicare, and Medicaid. They want to pay to enslave people who wish they were citizens by killing actual citizens. The irony isn’t lost on me — especially since  our own government’s study showed that refugees don’t cost us money. They bring in money.  My strong suspicion is that Social Security, Medicaid, and Medicare are also bringing in money to America by propping up Big Pharma and the medical industry, but that’s just a guess.

Besides, we all know this isn’t about money.

There are members of the disability community who say that we’re literally fighting for our lives now.  I think our lives are already forfeit, and we should go out swinging if we’re not running, but I’m admittedly pessimistic.

My husband’s litmus test for whether or not we should try to leave the country is if there’s a registry that gets started.   But, let’s be real here: I don’t need a registry to be in danger.  I’m disabled and on SSDI and Medicare.  I’ve been on a registry since 2011, and I know how fascism works.

What I wonder is how long it’ll be before America relents and accepts these concentration camps as “normal” and forgets that the government has already “lost”  1500+ children? How long before another school shooting?

If Americans can’t or won’t stand up to make it safe for our children to go to school without fear  of of being shot — to the point that it’s actually more dangerous to go to school than it is to be a solider in an active war-zone, and they can’t stand up in a meaningful way to stop the literal torture of refugee children whose only crime was hoping for a better life in our country — then they’re sure as shit not going to stand up for their aging parents or disabled friends and family.

So, the question becomes “What can we actually do?”  And I think that the elderly and disabled can do a lot more than Congress supposes. We have a lot more value than most folks realize.

Immigrants do too.  Maybe we’ll all be lucky and Melania will save the world… but probably not.

35751155_1002309636591951_2924683926108635136_n

 

Ke(y)to Happiness?

The other day, I made a comparison chart for 7 diets that I had considered trying or had actually tried in an effort to improve my MS. It ended up getting featured on Modern Day MS, which is pretty cool.

dietcomparisonpt1

.dietcomparisonpt2

I am almost certain that the diet that I need to be on is the traditional ketogenic diet. It’s ostensibly the best diet for overcoming NAFLD (Non-Alcoholic Fatty Liver Disease). This graphic outlines 7 ways that being in ketosis can help you, and I need help with all seven things!  

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Unfortunately, despite my logical brain knowing that this is a good idea, the most of me is absolutely dreading this shift. I will miss the convenience of restaurant food and delivery very much. I will miss comfort foods. I will miss the quiet calm of not having to justify my nutritional choices to others or to myself. (Because, let’s be real, the constant chatter and fretting of Anxiety will happen no matter what, and it’ll do its damnedest to make me question myself every bite along the way.)

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I think one of the hardest things about changing my way of eating at the moment is the fact that I have a precocious three-year-old who survives primarily on Goldfish crackers, peanut butter Ritz Bits, chicken nuggets, French fries, and various fruits. Honestly, reading that, I feel Shame. (“Big S” shame. Toxic shit.) Of course, like anyone seriously considering this diet, I watched The Magic Pill on Netflix, and felt like a terrible parent.

My boy is 39 inches tall and nearly 40 lb. I don’t know that changing his diet is the right thing to do – but, I do know that I will absentmindedly snack on Chex Mix if I’m serving it to him. If I’m genuinely convinced by the science surrounding the ketogenic diet — about it being the optimal way for humans to eat — why would I continue to feed my child a diet that is likely to set him up for type 2 diabetes in the future?

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My little ham.

Why am I so filled with anxiety over justifying these nutritional choices even to myself? Do I just like sugar that much? And, why is it so damn hard for me to just be part of normal society? Isn’t it enough that I’ve got a majillion chronic illnesses? Do I need more social isolation? Do I really have to make my life even more difficult? 

And will it just make life more difficult, or will it actually work?

If it works, it could make things so much better for us. I want to be able to imagine a future free from complications of NAFLD, hypertension, high cholesterol, and depression and anxiety. I’m honestly a little giddy over the thought of raising my seizure threshold. If I actually believe the science regarding how my physical health should improve, then it’s absolutely worth it…

Unfortunately, I have doubts. And it’s reasonable that I have doubts! Scientists sometimes lie for money. I did everything I was told by my doctors regarding diet for most of my life, which meant eating lots of low-fat, high complex carb food, which has, in part, led to the health that I am currently experiencing.

I feel so hopeless and depressed.  Living in a post-fact society, I have no idea who is trustworthy.  I want to feel empowered and excited. I want to inspire you to come of a journey of health and rebirth with me, knowing that the outcome will be stellar and worth the emotional investment.

The truth, however, is that I’m having a really hard time even being motivated right now, and so I’m looking for as many credible studies as I can find. Like these… and these… and this. It’s easy to find pieces challenging it.

My therapist isn’t much help with my depression these days. She says I have all the tools in my tool box.  It’s all up to me.  Well, either it’s all up to me to take the best possible actions or it’s time to find a new therapist, which may also be one of those positive actions, depending on whether or not I’m able to continue to hold myself together. To be totally honest, the idea that I could have “beaten” my mental illnesses sort of cracks me up when I legit had to do EMDR butterfly hugs just this morning.  

Still, I know meditation and my actions are only part of the equation.  Major depression is a biological disease affected by MS and caused by brain inflammation. Oh, and btw, “[p]eople with depression who [experience] suicidal thoughts … exhibit significantly higher levels of TSPO, … indicating inflammation of the brain.” [source] I’ve only visited that thought pattern a few billion times. 

But, guys — guess what is decreased when you’re on a ketogenic diet? Brain inflammation. [source]

So, I will start this diet on Memorial Day whether I feel like it or not.

I am ready to feel better. I want to be happier and lighter-hearted and thinner and to live longer for my boy. I’m just not looking forward to the hard part.

I’m glad to be reading Barbara Applebaum’s book Be Your Own Superhero. It’s really helping me with motivation right now.

Also in a positive direction, I have logged out of Facebook in Chrome on my telephone, and I will not log back in. So, now I not only do not have the app, but I have to actively log in on Chrome or open up my laptop if I want to immerse myself in other people’s opinions, problems, and other random bullshit.

I decided I’m tired of putting myself in harm’s way, and with the knowledge that real life is triggering my PTSD on its own, (Thanks, Dominionists!) I don’t need to poke the bear. I want to use my time better.

So, I’m using that time to craft a month-long meal plan with recipes. I’ll have a plan for ~1400 calories/day for me and one for whatever Adam’s ideal calorie count happens to be. I’m guessing ~1800.

Let me know if you want to do it with us. 

It’s Not Cancer!!!

The tumors in my liver are benign, likely caused by ~20 years of hormonal birth control. My bone marrow looks good. Chromosomes look good. Doc thinks that the high LDH was caused by nonalcoholic steatohepatitis (NASH) — a specific type of fatty liver disease, which we already knew I was dealing with.

So, amazingly enough, there’s nothing new to deal with here — just another situation where I’m being told to lose weight and increase activity. I’m on board. I’m eating less, thanks to gastritis, and I’m almost done meal planning for a month’s worth of AIP. Part of me is looking forward to it.  It’s gonna be my form of Lent.

One great side effect of genuinely believing that I was about to have to fight cancer is that I have a fucking long to-do list, filled with awesome things.  Stuff like, “Record all your original songs, even the ones that you think are mediocre.” and “Remember how to have fun by going on lots of adventures and writing about it.”

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I will try harder. This health bullshit is boring AF.

I think I’m going to need to hire someone to transcribe music for me. For too many years, I’ve let my distaste for transcription (read: knowledge that my skills are so weak that it’s painful, slow, and often inaccurate) stand in the way of my songwriting.  It’s actually the reason that I dropped out of Songwriting I at Berklee.  I rocked all available lyric writing classes and absolutely loved them, but when it came to actually writing out my own music, to be judged by a guy who has taught iconic songwriters, I cowered. There’s no other word for it.  I felt like I just couldn’t do it… so I couldn’t. And I haven’t. Add the facts that the class was at 9 a.m. and I’d just chosen music business as my major, and dropping the class seemed like a no-brainer at the time.  If ever I wished I had pushed myself harder while in college, it’s then.  Opportunities like Berklee songwriting classes don’t come around every day.

One thing that 2 weeks of wondering about my mortality was good for was recognizing areas where I’ve let myself down, and I’m kind of sick at my stomach over my level of cowardice. I’m gonna work a lot harder on feeling bad about myself for actually making mistakes instead of feeling bad about myself for not doing things that I’m afraid I’m going to fuck up. You can’t fail if you don’t try… but if you don’t try, you’re kinda failing at life.

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