A Convention Just For Us

There are days where I wonder to myself why I ever went to law school.  Today is one of those days.

I woke up after a really excellent dream.  I had put together a convention for my Facebook friends and their Facebook friends only.  It was by invitation only. Everyone had fun playing board games, dice-rolling RPGs, and watching movies and bands.  All of the bands that played at the convention were friends of the group.  Folks like Schwarzenator, Joyce Lee and The Killing Shoes, and Esque.

I got to thinking today, and living that dream is totally plausible.  I have a lot of event coordination experience, and some truly excellent friends.  I bet I could make one hell of a convention/party for about a thousand people or so.  I think it would take at least a year to plan properly. I just need to make a business plan for it, and get some people on board to help with it.

Now, I know what you’re thinking: why not just get your friends to go to a convention that already exists?  I mean, there’s ComicCon, GenCon, DragonCon, AwesomeCon, and so many others that I could go on… and honestly, it’s because I don’t want to do what’s already been done. I’m not looking to do the same thing that’s already out there. I’m looking to get us computer geeks together in a social atmosphere.  I’m not looking for cosplay. (Though with my friends, I wouldn’t rule it out…) I’m not looking for comics. (The books — funny people, however, I *am* interested in!) I’m not trying to force people into playing games with strangers. I’m looking for a party with friends and friends of friends.

One of my friends, Reichart Von Wolfsheild, started BIL – the Southern California counterpart to TED.  He’s a huge inspiration to me. One of the things I can see happening at this convention is inspirational talks by folks like me who have chronic illnesses who are letting people know how they cope with their issues and live their lives to the fullest.

I think I’d also have some people in the entertainment industry, like folks who are involved in TV or who are professional musicians come and talk about what their daily lives are actually like.  Maybe visual artists too.  I’d call the track “Secrets of the Universe.” 🙂  Because that shit needs to be demystified and de-glamorized.

Anyway, I think getting this idea out of my head and into the real world is the best that I can do for myself and for the world today. It’s a step in the right direction.

By all means, let me know what you think – positive or negative. Just don’t be surprised if you’re negative if I don’t listen. 😉

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Through The Looking Glass

English: Screenshot of Alice from the trailer ...

English: Screenshot of Alice from the trailer for the film Alice in Wonderland (1951). (Photo credit: Wikipedia)

This past weekend, I traveled to San Francisco to attend a vow renewal ceremony of two very dear friends.

They had an Alice in Wonderland theme, and the event took place in a beautiful house with a view on the Bay that was breathtaking.

Of course there were the mandatory jokes about how great it was that each of them was marrying their spouse, but to be honest, as someone who had just celebrated her second anniversary with her husband, it was great to see 2 people who love each other so much at 10 years that they’d marry each other all over again.

To tell you the truth though, my favorite part of the event was seeing them interact with their 3 year old daughter, Lily, whom they had given up for adoption to John and Mikio — a wonderful gay couple who came in with her all the way from New York to attend.

And in a subtly-annoying-but-ultimately-serendipitous sort of way, John, Mikio, and Lily got tied up in traffic — so the ceremony that was set to start at 4 didn’t start until after they got there — much closer to 7 — which also happened to be the same time that Grandpa Ray made it to the party. And because of that, it was so much more romantic! Guests from ages 3 to 95 were there, and it was right at sunset, or twilight, if you prefer…

Lily was blowing bubbles through the whole ceremony and dancing and cheering.  And so was my heart.

A child really is the embodiment of 2 becoming 1. You couldn’t help but see the beauty, joy, and femininity of Deb in her, and the strength, intellect, and attention-commanding presence of Jason all present in her at the same time. She made me think about what a child would be like if it were a mixture of Adam and me… and it made me want one all the more.

I’ve been really hung up on getting pregnant with Adam’s child and coming off of my meds in order to do so.  Last week, though, I had to temporarily go back up to 60mg of Cymbalta because I was having suicidal thoughts again.  I know for a fact that it’s a chemical thing, and not me, though.  Life is so great right now, with Adam. We have family here in Chicago who love us, friends who like to hang out with us, plenty in the city to do and to explore. And there are always friends and family members that we love and want to visit all over the country, and even some in different countries.   No, I want to live. I want to bring more life into the world — so any suicidal thoughts — I’m blaming those on medicine, or lack there of.

I was doing okay at 40mg for a couple of weeks, so we’re going to try to bring me back down again to that level over the next 2 weeks. Then we can do the 6 week taper to nothing.

Trying to come off of SSRIs is so much more difficult than I thought it would be. It requires far more patience with myself and with the process than I anticipated, and a stronger commitment to meditation than I previously had.  It can only be a “some days” thing if I’m around friends and family.  If I’m mostly alone, I had better be letting the thoughts go their merry way by order of meditation every day.

But, on the bright side, I’ve noticed a significant decrease in seizure activity.  I don’t know if I can attribute this to the decrease in Cymbalta or to the increase in exercise, or some combination of the above.  Either way: I only had 1 seizure while I was with my friends this weekend, and that made for a great mini-vacation.

All that, and I even made new friends at the party.  In my new, pretty, shiny party dress.

*contented sigh*  Life is good, readers.  Right now, life is good.

I do it for love, love, love love…

After over 6 months of dealing with seizure disorder, MS, and all the complications that have come with it (the emotional struggles and juggled responsibilities), Adam and I were both exhausted. Even the most loving couples have their limits – and we’d hit ours.

So, being the spontaneous kind of girl that I am, I hit Hotwire and wanted to see if their 4 star hotel at a 2 star price ad campaign was real. It *so* was. We went to the San Diego Hilton Resort for one night for less than $100, and we reconnected. We went to the beach, to Balboa Park, and all along the bay. I got to walk around and feel like my old self, and I didn’t have any seizures the whole time! (yay!) We remembered why we got together in the first place, and left feeling relaxed, refreshed, and with romance rekindled. (Come on, how often do you get to use alliteration? Besides, “R” is my letter. 😉 )

I know we can’t possibly be the only couple that is challenged by the stress, frustration, and sadness of chronic disease. I think we’ve got a good system though for making things better, and I think they’d be applicable to anyone in our situation. Continue reading

It comes in a can, and it’s not quite ham…

It’s SPAM!
Over 160 “comments” today to my article about new MS Meds… which were all about videos and casinos and other random BS. Thankfully, WordPress has ways to fix that crap but fast.
Can anyone explain to me *why* people bother using a bot to spam the shit out of one page? I mean, if you want to get customers, I can see 1 post per entry – but I guess the bots aren’t set up for that. Besides, who would come for MS and Seizure Disorder info, or even a glimpse into my world who would genuinely be swayed by spam on my site to go play at an online casino? Let alone an online casino who posted over 150 links…
I guess it’s my fault for letting people put their website on their comments who aren’t registered. I just don’t want people to have to register to leave a comment. *shrug* I figured it’d be easier to get interaction with my readers that way.
Anyway, I’m chilling at my friend Jenny’s house today. She’s come over to my place SO many times since I haven’t been able to drive that Adam took pity on us both and dropped me over here for a day with one of my favorite people in L.A. Why do I love this girl? Because we passed several homeless people on the way to lunch, and I asked her on the way back if we could stop at Subway, and I didn’t even have to justify to her why I was buying a footlong sandwich for a homeless person I never even talked to. I saw his halloween candy stash and just put the footlong sandwich on top. I hope when he wakes up that it makes his day.
Sushi, girl talk, a marathon viewing of How I Met Your Mother, Season One, and even a nice long walk (30 minutes each way!) that I completed without pain or seizure. Can you ask for better than that?
I know I’ve said it before, but being off Keppra has been so astoundingly fantastic. I had a couple of seizures yesterday, but once again – restful sleep without nightmares, almost no brain fog, and I’m way more energetic.
So anyway, I should get back to the HIMYM marathon of goodness and continue making bracelets. I know I keep taunting you by saying, “Pictures coming soon!” but I really mean it! I’ve got several designs now. :)
Happy Monday, everyone.