I’m still here. Still at “safer at home.” Still covid-free as a nuclear family.
July brought a couple of really great changes for us. The most significant change is that Adam got a job! He’s working with SENS Research Foundation as their executive assistant. He’s supporting multiple executives, gets to work remotely, and is excited to be using his skills to support scientific research that focuses on life extension instead of just helping a company make profit. It’s been amazing to me how seamlessly his new job has fit in with our regular day-to-day life. It’s been such a blessing, and I’m so grateful for the serendipity that created this opportunity.
The other change is that Gabrielle has gotten her first vaccine dose! By now, we should have had a fully vaccinated family, but the clinic where she received her first dose is no longer operating, so earlier this week, I had to source a second Moderna dose for her. She’s supposed to go in on Monday at 10 a.m.
“HOORAY,” you might think. “FINALLY, THE MAJKA FAMILY CAN LEAVE THE HOUSE AND DO THINGS WITH PEOPLE!!!!” And before today, you and I would have been having a celebratory moment together. But today, a daycare worker in central Illinois popped positive for monkeypox, and I’m gonna nope right outta that one. We’ll stick to outdoor, masked hangs for the time being, thanks.
I have both hypogammaglobulinemia (a primary immune deficiency) and multiple sclerosis. I also gave birth in April of 2020. Because of this, I’ve been hyper-vigilant about covid safety for our family this whole pandemic. I’ve been reading studies as they’ve come out. I’ve been reading physicians challenge each other over FB and Twitter. I’ve been watching, astonished, as the Western world has allowed politicians who are more concerned with the economy than the wellness of the citizenry to shape public health policy.
Someone’s gotta say it. The world has lost its damn mind.
Our leaders have purposefully lied to the public, chased after herd immunity that is not possible, and the result has been and will continue to be mass death. The public not only seems perfectly alright with it, but to defend the practice because they don’t enjoy wearing masks and can’t cope with their idea of normal changing.
But seriously, covid-19 infection can cause every single one of my disabling conditions.
- It can cause you to have an autoimmune condition or become immune compromised because of the way it affects T cells.
- It can cause multiple sclerosis. (It’s not being called that, but increasing # of lesions in the brain, showing on MRI is that.) Also: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
- It can cause seizure disorder.
- It can cause depression and anxiety.
- It can cause hypertension and increase likelihood of stroke for a significant time after infection.
- And that’s only a small number of the long-term conditions covid can cause.
But people are pretending that the pandemic is over, despite numbers being high almost everywhere. They continue on with life as normal, acting like getting infected with covid-19 as often as every 3 weeks is not a big deal. I don’t get it. Is their health so taken for granted that they actually don’t care?
I’ve even had friends try to tell me that I should “stop living in fear” and just “get back to living life.” They clearly did not realize that this was already my life. I was staying home before it was trendy because I had to. I can’t drive anywhere, thanks to the seizures gifted to me by MS. I do not need a second helping of all of *wildly gestures* all this.
PEOPLE, YOU DO NOT WANT TO WALK THIS PATH.
Please, wear a N95 or P100 mask anytime you leave the house and will be around other people, and don’t take it off unless you are in a safe place. An indoor restaurant (like a school cafeteria), unless it has been equipped with Far UVC lights and HEPA air filters, is not a safe place.
If I’ve said it before, I’ll say it a thousand times: I would do literally anything to protect my children from having the same health outcomes as I have had. Shit, I wouldn’t wish these conditions on my worst enemy — and these outcomes are only a few of the ways that covid can affect you. “We have the tools” is such a lie. Physicians can’t even agree about whether or not long covid is real. (Spoiler: IT’S REAL.)
In fact, I have now reached out to 3 of the 5 doctors who are a part of my care team to ask about whether or not a prescription for Evusheld would be appropriate for me and whether or not I should go get my 2nd booster (5th shot) now or wait for the updated booster in October. So far, none of them can help, and they don’t even know anything about the treatment. Is this what protecting the most vulnerable looks like? Really?
Maybe we’ll get lucky, and the public will decide that monkeypox doesn’t sound like fun, so they’ll implement adequate protective measures for both pandemics… but recent lived experience seems to indicate the opposite is true.
In the meantime, I’ll be making life as fun as possible while we’re outliving public health policy based in eugenics. I remind myself, every day, when I get upset that the government has essentially thrown us to the wolves, that the most punk rock thing I can possibly do is loudly enjoy myself while persisting despite anyone’s efforts to bring me down.