Slightly more effective than whining to myself.

A long time ago, I started keeping a journal online. Back in 2001, LiveJournal was all the rage with the group of friends I had made during high school. I loved it. I wrote all the time, about any little thing that came into my head, and so did most of my friends. I was always excited to read what they had written because it made me feel close to them, even though we were miles apart from one another.

I kept that online journal through the end of college, through my entire first marriage, and even through law school.  That blog was responsible for me making some of the best friends I’ve ever had, as well as learning a lot about myself, mostly because I had absolutely no verbal filter on there whatsoever. I never considered how I was publicizing my emotional garbage or how it affected anyone else. I just wrote — raw and honestly. And there was a sort of freedom in that. A kind of validation that I was able to give myself. It was proof that what I thought and how I felt mattered. I miss writing with that kind of abandon, but I also value the restraint that I’ve learned to have with my words.

Words can hurt or they can strengthen. They can inspire and they can thwart dreams.  They can foster intimacy, and they can degrade reputations. Words have power. But so does silence. And when I’m silent, it usually means I’m either terribly busy or that something’s wrong.

Over the years, I’ve chronicled some serious stuff here. Some deeply painful emotional growth, struggles with disease, diet, mental health and, sure, even some random bullshit. But at least I was writing.

These days, with a 3 month old, it’s hard to do much of anything. It’s hard to get restful sleep. It’s hard to remember to eat full meals. It’s hard to go to the bathroom without feeling guilty, to remember to brush my teeth every morning, to shower regularly. But mostly, it’s hard to be creative.

It’s both hard to find time to write, and harder, when I get some “free” time, to find the words to discuss what’s on my mind without breaking down and crying.  The only way out is through, and someday, God-willing, I’ll feel like myself again. I just have a feeling it’s going to take a lot of effort.

And, yes, I’m very well aware that this is textbook postpartum depression. I’ve seen my therapist, and she’s basically said that I’m handling it as well as anyone can.  She said that PPD creates ANTs (automatic negative thoughts) on steroids. To be clear: I’m not actually the worst mother ever, ever.  But we all knew that. Postpartum depression has been written about exhaustively.

You know what hasn’t been written about?  How totally shitty it is to be a decent writer and to be reading absolute garbage to your kid repeatedly.

Every day, I read books to my beautiful son. He loves them. His eyes light up, and he smiles the moment a book comes out.  He doesn’t light up when I bring out my laptop and read stories out loud. He actually cares about the paper in my hand, and his happiness makes me smile, so I spend a lot of time flipping pages and accidentally giving myself paper cuts.

Sadly, these books are terrible, people. They’re 5-10 pages long at most, and each page has maybe 2 lines. More often than not, those lines rhyme in a sing-song fashion.  And beyond rhyming, they teach basic stuff that in today’s day and age don’t matter one iota.

Who cares that the cow goes “moo?” when you’re more than likely never going to spend any time whatsoever with a cow? We are not an agricultural society anymore. Why are we teaching kids about livestock?

Why, if you’re reading about “all the thinks you can think,” would you challenge a baby to imagine places and things that don’t exist (and never have), when they’re still trying to get a basic grasp on the world around them?  I mean, he doesn’t even know what “blue” means yet. I’d love to challenge him to imagine a lake rather than “a day in DaDake.” He doesn’t know what “day” is yet. But who’s allowed to rip on Dr. Seuss? It’s blasphemy. The guy was a genius, and most of his books are amazing. I guess I’m lacking proper respect.

So, yeah, I find myself getting irrationally angry and frustrated with children’s baby literature, but even more irrationally angry with myself.  I am constantly thinking, “I could write something better than that!” And yet, when I sit to write something, I think the most unhelpful thoughts – like “What if this has been done already?” or “Am I wasting my time? I could be making myself something to eat. Is this a good use of my time?”

It’s a sort of writer’s block that I can only compare to how I have dealt with music.  And I’ve dealt with music very, very poorly. I mean, I graduated from Berklee College of Music and studied voice, but I don’t perform with anyone, anywhere, ever. It’s not like you can go to karaoke when you have a newborn, and when I sing at home, I have a hard time silencing my inner critic. WTF is that about? Not helpful, ever. It’s not like Henry has anyone to judge me against or that a 3 month old would have the audacity or even the ability to be shitty to a mom singing him lullabyes.

And God help me if I consider spending any time with my piano or guitar. Even before I’ve tried, it’s like, “Have you ever taken a lesson in your life, Rae? (Only several years worth.) Not sure why it’s like I don’t know a damn thing.” I don’t have any idea what I’m actually afraid of, but it legit feels like panic and fear. I remember sounding bad for years to get to sound good. Why should I be so impatient with myself now?

So, yeah, I’m creatively constipated. That’s the only way I can describe it. I desperately want to make music and write new songs. I wholeheartedly want to create children’s books that Henry will find helpful and that will show the world that there’s some value to my existence… but I can’t seem to do shit. (Pun intended.)

At least, I can blog while my husband and child sleep.  Because blogging is basically whining to yourself. You just happen to let the whole world see it, and that accountability counts for something. It’s not high art, but it’s a damn sight better than being silent.

Quick Post

This post is gonna be quick, because I have no idea how much longer Henry’s nap will last. I’ve already eaten my lunch, so this is bonus time. Of course, as I typed that first sentence, he woke up. He’s doing the little blinky thing that says, “Maybe, just maybe, I’ll fall back asleep if you give me my binky.”

My kid is so good. He’s so sweet, and he only cries when there’s legitimately something to cry about (hunger, needing a change, having gas, or just feeling bad from vaccinations). But being a mom with MS is hard — and I know it’s only going to get harder.

I miss 5 Hr. Energy because I’m still pumping breastmilk. My legs desperately miss nortriptyline and weed; I’m having a shitton of muscle spasms recently. I miss the freedom to nap all day if need be. But I love my son, and his health and wellness is worth forgoing medicine.

The real mindfuck for me when it comes to medicine is that we’re already discussing a second child… have been since before Henry was born. The idea that I’ll have the energy/stamina necessary for caring for 2 infants is laughable to me, but what’s the alternative? Getting back on MS meds and then off them again? The side effects are often worse than the disease without them for me, so I don’t know that they’d make anything better.

Pregnancy was pretty great as far as dealing with my symptoms goes. Adam is a fan of the idea of waiting until Henry’s 6 months old and then trying for another. That’s 3 months from now. My OB’s assistant said it’s perfectly fine to get pregnant after 6 months because of how well I have healed, but that the doc would prefer that I wait 12, and that he’s a fan of VBAC if possible. While I wouldn’t want to deal with another c-section recovery (I’m only now feeling normal, 3 months later.), and I think it would be interesting to experience birth as biology intended, the possibility of uterine rupture with VBAC scares the crap out of me. I’m so risk-averse when it comes to childbirth that I can’t even quantify it.

I’m somehow less risk-averse when it comes to dealing with MS, though. My neurologist wants me back on DMDs as soon as I am comfortable with doing so. He has said that he’s not directly telling me to stop breastfeeding and to get back on DMDs right away, but that’s only because breastfeeding is such a personal choice. He wants me back on meds, like, yesterday.

If we do decide to go for a second child within the next year, I’ll be off DMDs for at least another 2 years – and that sounds good to me. I hate how my seizure activity increased due to pseudoexacerbations on Gilenya, and I don’t miss nightly shots and tender spots with Copaxone one iota. I honestly am unsure if there’s a DMD on the market that is actually helpful for me right now…. but I am also not sure how well I’ll be able to “mommy” two kids who would both be under the age of 3. (Read: not potty trained, and not good at talking)

The truth is, I have no idea what the right move is. I guess that’s the nature of life though, right? You roll the dice, you takes your chances. I do know Henry deserves a sibling, though. I can’t imagine my life without my brother, Daniel, and Adam loves his 3 brothers. So, we’re definitely gonna have another kid, it’s just a question of when. I’m 34 right now. If I wait much longer than the suggested year, fertility could potentially become an issue, and we really don’t want to deal with that.

Hey, maybe we’ll luck out. Maybe, my MS will be stable without treatment, we’ll wait til next year to start having a second child, I’ll have the little one when I’m 36, and by the time I’m done breastfeeding, there will be a new, more effective, less awful MS treatment out on the market. That’d be awesome.

And speaking of awesome: can I get some cheers for the power of the paci? Kid fell right back asleep. That little piece of plastic is got-dang magic. Now, of course, the dog is scratching at the door that he needs to go out. A mommy’s work is never done.

We’re alive, promise!

11416282_10207252122451045_3300285333323224714_oHey. I know I haven’t written in a while. There’s an awful lot going on!  Henry’s now 11 weeks old, and he’s smart and adorable and requires an awful lot of my time and attention. Kiddo already likes books, can turn pages on his own, and enjoys grabbing toys and babbling here and there. It blows my mind.

Also, the Great House Hunt of 2014-2015 is finally over. We close on a place in Orland Hills on 8/11. Getting to this point has been frustrating, but we’re in the home stretch. Time for us to start packing, actually…

Of course, I have all kinds of thoughts and feelings about everything that’s going on, but I don’t have the necessary combination of time, mental acuity, and somethingsomething to make quality blogs at the moment — but I will eventually.

I’m hoping a couple of cute pictures of my little guy will help make up for my lack of posts in the meantime.

My favorite onesie.

My very favorite onesie.