It’s been a few days since I’ve last updated my blog, so I figure I ought to do that.
I am sick.
I have a virus of some type. I’m sneezing a lot, having to blow my nose, have aches all over, and want to sleep constantly. Yesterday, I woke up at 10:30 a.m., was up til noon, then slept til 2:30 p.m.. Today, I slept til 11:30 am. If Adam hadn’t started pinging me with Words With Friends moves, I probably would have kept sleeping. To give you some perspective, bedtime is 11. That’s a lot of zzz’s.
The thing is this: I have my second audition with the band tomorrow night. I don’t know, at this point, if I should email them and see about rescheduling. I don’t know if I should hold out hope that I’ll be better by then, or if it’s a pipe dream. I’m better today than I was yesterday, and I’m sleeping loads, so I think it’s conceivable that I could be better… I feel like I’m gambling right now.
Whenever I get sick, my MS symptoms kick up… so I’m dealing with a lot of fatigue, cognitive fog, pins and needles in my feet, and neuropathic pain in my legs and back. It doesn’t make for the best mood.
No therapy for me this week.
So my awesome therapist, K, is sick this week too. She woke me up at 8 a.m. to cancel tonight’s appointment. I think we have the same thing, only she has a high fever. That means that it’s up to me to celebrate the accomplishments that I’ve made this week on my own. I get to pat myself on the back for basically silencing the voice that’s been telling me to kill myself.
I’m hesitant to be too proud of myself. The voice has only been gone for a few days, but it’s been good to not have to fight it. I like not thinking awful things about myself. I like not giving my self-doubt the power to run amok. I like remembering that aside from being in control of my actions, I can be in control of what I do with my thoughts. I may not be able to be in control of what thoughts occur, but I can be in control of what I do with them.
Sitting in the Dark is a Bad Idea.
I know better than to be doing what I’m doing right now. I’m sitting in a completely dark room, with only the light from a single window to illuminate the room. It’s depressing as hell, since, like most days in winter, it’s gloomy and grey outside.
I’m upset as I can be right now, after finding out that the Chronic Disease Fund accepted my application but is out of funds, and that the Assistance Fund never even received my application but still is out of funds – meaning that I have no copay assistance and still cannot afford the nearly $600 copay for 1 month’s worth of my multiple sclerosis medication. Copaxone is too damned expensive. So, I have to reapply with the Assistance Fund, and then begin the fun-fest that is calling both the Chronic Disease fund and the Assistance Fund on a daily basis to check for funding. There’s nothing quite like a daily dose of begging and rejection to remind you of your worthlessness – financially speaking, of course.
Fuck this noise, I’m going back to bed.
Seriously. Today can eat a big old bag of dicks. I don’t feel like learning the songs I need to learn for the audition. I don’t care about anything. I don’t want to do the laundry or the dishes or take out the trash. I kind of hate everything because I’m hurting all over. I can’t even be bothered to make myself food. I had a protein shake for breakfast and called it art. I think the fact that I’m able to say, “Fuck it, I’m going back to bed.” as opposed to, “I want to die.” is progress. At least right now, I don’t think any of this shit is my fault.